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Upper Cervical Region help
Neck Pain: Cervical
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Aviatrix36440's picture
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Upper Cervical Region help

Greetings fellow Neckies! I have tried to Google to find these answers, even looked on here but didn't find much. C1/2 sure, C4/5/6/7 sure, not the poor lonely C2/3! I apparently now have issues forming in my C2/3 cervical spine area. I was trying to find out what the common symptoms are, or even some of the odd ones? I see my NS on Tuesday concerning the status of my C6/7 fusion issues - so I will bring this up as well as far as "should I be concerned..." Here are the symptoms I have had in the last few weeks that I don't think have much if anything to do with my C5/6/7. See the MRI excerpt below.

If I sleep without my hard collar (back and right side sleeper) I awake with the headache from hell on the back of my head, and sometimes it radiates to the left side of my head.

In the last 2 weeks, if I have a deep yawn, my left eyelid tries to close! This self fixes in about 15 seconds back to "normal."

Occasionally I get Tinnitus in the left ear - high pitched, not hissy. If it happens 10 times, once will be heard in the right ear.

Several times I have gotten "diagonal sparkles" in my left eye and if it continues beyond 15 minutes, the right eye starts doing it. When this happens I also lose most of my central vision and peripheral vision - no pain or light headed feeling associated with it. <-- When this happens, it is after I have my head bent forward for 10 minutes or so. The first time it happened I was driving home after a positional MRI and the last position was flexing forward for about 15 minutes. I had to pull over to let it pass.

I sit low sugar on average. As the eye things have happened, sugar 70+, BP 110/70 and heart rate around 75-80 - again, no pains associated.

Input/thoughts appreciated. Thanks in advance!!

Brenda

_____________

ACDF C6/7 & Partial Corpectomy with Instrumentation Aug. 2009 - Top of fusion separated still not fusing Sad
ACDF C5/6 & Partial Corpectomy with Instrumentation Mar. 2008
Ulnar Subcutaneous Transposition and Guyon’s Release Apr. 2008

C2/3 Disk Bulge / Stenosis / Per NS - DDD (new) Oct. 2009 – No symptoms at this time: Left posterolateral disc osteophyte complex resulting in moderate crowding of the left C3 nerve root exit zone. Chronic moderate left-sided foraminal narrowing related to uncovertebral joint thickening and posterolateral towards foraminal bulging of the disc.

Lyrica

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Sources

I must say that I have been experiencing much of the same symptoms as you Brenda for nearly 30 years now (since my electrocution in 1980). I have been to countless neurologists, neurosurgeons, and other doctors during that time. All of which seemed to agree on the primary diagnosis of "migraine headaches" -- actually the term they used is "hemipaligic migraine" since there are many more symptoms that I go through that actually present as a stroke.

It was not until I had a neurologist diagnose my arm issues (pain, tingling, and some motor function loss) as a "mini stroke" that I lost all confidence in the entire neurological "practice."

My wife is a medical librarian that came across an article about the cervical issues and treatments (sorry I no longer can site the article - but I do remember it was a study done at Harvard). This prompted me to head for an Orthopedic Surgeon -- well, of course I believe this guy found my issues through some simple CT and MRI processes.

The point here is that there is much information out there, but depending on our condition or informational specialty it depends on where we look. As an Internet Application Developer, I happen to know that there is a ton of "mis-informtion" on the web and most I would not rely upon. My suggestion to you is head for your hospital library and talk directly with the librarian to find specific studies and pier-reviewed papers on the area and symptoms that you are going through.

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Einstein

Good afternoon Einstein, and thank you for your reply. Smile When the "eye" thing happened, "stroke" is the FIRST thing I thought about as well. But I didn't have any of the other stroke symptoms they teach, so I pulled over the car, called the hubby and let it pass. Fortunately my headaches aren't continuous at this point, and seem directly related to position(s) I have my head in. As I mentioned a bunch of them eased up just by sleeping in my hard collar of all things! If I catch the headache just as it starts, I can most times stop it. If I delay whoooooaaa-boy!

I am hoping I will be lucky and "if" this is from the bulging C2/3 it won't progress. Smile My past disc track record though - hummm...fingers crossed as they say! When I first broached the subject of my headaches maybe from that area, my NS immediately said, "No, it isn't coming from there." Now with this other stuff, maybe more pieces of the puzzle for him? I am hoping to know something soon. Take care, and again thanks for your input.

Brenda

_____________

ACDF C6/7 & Partial Corpectomy with Instrumentation Aug. 2009 - Top of fusion separated still not fusing Sad
ACDF C5/6 & Partial Corpectomy with Instrumentation Mar. 2008
Ulnar Subcutaneous Transposition and Guyon’s Release Apr. 2008

C2/3 Disk Bulge / Stenosis / Per NS - DDD (new) Oct. 2009 – No symptoms at this time: Left posterolateral disc osteophyte complex resulting in moderate crowding of the left C3 nerve root exit zone. Chronic moderate left-sided foraminal narrowing related to uncovertebral joint thickening and posterolateral towards foraminal bulging of the disc.

Lyrica

Joined: 09/25/2009
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Brenda, I haven't looked at

Brenda,
I haven't looked at one of those diagrams lately that shows where the different disks and nerves come into play at the targeted areas of the body. You would think you could find something on this somewhere online.

What has recently happened to cause this new injury to the c2/3 anyways? I feel badly for you, like you didn't already have enough going on??? Let us know what you find out.

I had a near miss on the road Sept. 22nd and it caused my c6/7 disk to bulge anterior and posterior. Of course, this is the one below my fusions at c4/5 & 5/6. I was hurting so much that I finally had an MRI again, hadn't had one since prior to my surgery in 2004. Before the MRI, I assumed that I was simply getting worse with the pain in my neck & arms and was ready to investigate further SCS therapy. The pain had been pretty constant for the last few years, but suddenly increased. It took me awhile to put together the accident because my car didn't have impact. Duh! So, instead of the SCS,I had another ESI in the neck and OUCH did that ever hurt. I was also so "juiced up" from the steroids, I could barely walk or talk right for 2 days. My head felt like mush and the pressure in my head was completely bizarre. I felt so jittery and had a low grade fever, too. Yuch, I truly hate those shots! Anyway, I will see how successful the procedure was soon I hope.

Take care of your self. I'll keep a watch for your message.

Cindy

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C2/3 My guess ???

Howdy Cindy!

See, told ya it's a bugger to look up for info! From what I did find, short of trauma, that level is like a 1% chance of problems - gawd, gotta play the lottery for sure!!

My guess? Back in April of "02" I was the lucky recipient of a hit and run through an intersection! The pain was instant and on a scale of 1-10 about a 50! My husband took me to the ER, and all they did then was an x-ray and put me in a soft collar for a couple of weeks. I seemed to "come back" fine from that. A few years later my upper neck got really stiff so I hit my friendly chiropractor. He had me back to normal in like 3 sessions. When my C5/6 was going bad and symptomatic, they gave me an MRI - there wasn't anything going on at that point for the C2/3.

In April of this year I yawned and my C6/7 herniated back and to the right - blocking down on the exiting nerve root. Due to the instant loss of strength, numbness and pain along with how fast I healed on the C5/6 - surgery was offered and I was again fused at that level. About 5 or so weeks after the surgery a lot of my symptoms came back amongst others, so another MRI was taken. Now the MRI prior to surgery did state that there was a "posterolateral" disc osteophyte complex now at the C2/3 level. I wasn't exhibiting symptoms, so my NS didn't think intervention was necessary. The MRI after the surgery however now keeps the osteophytes, and now the disk is bulging aft and posterolaterally as well! I then began to wonder if some of these "odd" symptoms I started having had/have anything to do with that change. Even *I* can see that sucker on the MRI! My surgeon doesn't think the hit and run did it as that was 7+ years ago. I don't know though, as I see folks on here (neck & back) that had xx happen 20+ years ago and those very areas are now causing major issues?

I am not a fan of the ole knife, that's for sure, but I will be megga bummed if he can't tell me first what is going on with my latest fusion status, and too if there is anything I should be worried about with the "new" ones. Sparkle eyes and yawning with the eye lid closing isn't normal the way I see it! Tinnitus..that could be stress, but when I put them together, not sure. Hopefully I will at least have some sort of idea. I will definitely let you know what I find out Cindy, and Thanks!!!

Sorry to hear you are having problems below your fusions. I hope those shots work for ya. Only once they sort of worked for me - for like 2 days!? My doctor won't even order them for me anymore because my system just doesn't react to them. The steroid packs...same! Soo...YOU keep me posted as well woman! Smile Thanks again!!!

Brenda

_____________

ACDF C6/7 & Partial Corpectomy with Instrumentation Aug. 2009 - Top of fusion separated still not fusing Sad
ACDF C5/6 & Partial Corpectomy with Instrumentation Mar. 2008
Ulnar Subcutaneous Transposition and Guyon’s Release Apr. 2008

C2/3 Disk Bulge / Stenosis / Per NS - DDD (new) Oct. 2009 – No symptoms at this time: Left posterolateral disc osteophyte complex resulting in moderate crowding of the left C3 nerve root exit zone. Chronic moderate left-sided foraminal narrowing related to uncovertebral joint thickening and posterolateral towards foraminal bulging of the disc.

Lyrica

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Brenda

The new symptoms you are discussing seems more consistent with a circulatory issue vs a nerve issue caused by a bulging or herniated disc. The visual stuff you describe is something that generally comes just before someone passes out.

I have done a lot of training on the physiology of diving, which of course entails the body under pressure and different gasses and their effects on the CNS. The crazy thing is, that your new symptoms, fall right in line with someone suffering either a build up of carbon dioxide or oxygen toxicity.

The reason I bring this up, is not to say "Brenda you need to quit scuba diving in between Spine Health posts" (just joking with you), but to highlight that symptoms can be caused by so many different things. The single most effective way to find out what is causing your problems, is to see the doc.

This way simple things like medication reactions, low blood sugar, low or high blood pressure, can all be ruled out before jumping to any conclusions that point towards more surgery that may or may not have anything to do with your problems.

I would certainly want the doc to go to all lengths to rule out the "easy stuff" before embarking on the unknowns of surgery at C2 and C3.

Good luck with this one. Keep us posted.

"C"

_____________

"The way I see it, if you want the rainbow, you gotta put up with the rain. "

- Dolly Parton

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Diving

haglandc wrote:
The new symptoms you are discussing seems more consistent with a circulatory issue vs a nerve issue caused by a bulging or herniated disc. The visual stuff you describe is something that generally comes just before someone passes out.

I have done a lot of training on the physiology of diving, which of course entails the body under pressure and different gasses and their effects on the CNS. The crazy thing is, that your new symptoms, fall right in line with someone suffering either a build up of carbon dioxide or oxygen toxicity.

The reason I bring this up, is not to say "Brenda you need to quit scuba diving in between Spine Health posts" (just joking with you), but to highlight that symptoms can be caused by so many different things. The single most effective way to find out what is causing your problems, is to see the doc.

This way simple things like medication reactions, low blood sugar, low or high blood pressure, can all be ruled out before jumping to any conclusions that point towards more surgery that may or may not have anything to do with your problems.

I would certainly want the doc to go to all lengths to rule out the "easy stuff" before embarking on the unknowns of surgery at C2 and C3.

Good luck with this one. Keep us posted.

"C"

Howdy "C",

I had a full physical, nothing showed there circulation wise, and also went through my annual cardiology testing to include the Echo and stress test - nothing out of norms there. As I mentioned in the beginning, my first thought was "stroke", but at no time was there any balance or light headed feelings. Taking the "left eyelid tries to close when I yawn" out, I could almost parallel some of this with low sugar. The only problem with that is no light headed feelings. The ear ringing normally happens independent of other symptoms - weird.

Diving, haven't done that since the 70's, but from what I have been taught and such over the years in aviation, I fully agree that either O2 or carbon dioxide build up could be very valid. As you know I am on a beta blocker due to high but 'regular' heart rate. As my Cardiologist put it - quality beats not quantity! I feel like 20 years younger after being put on Toprol! From looking at my extremity skin color "pre and post" Toprol - again night and day there! The yawn and eye is some sort of direct connection on the physical aspect verses physiologically I believe. Still trying to troubleshoot the rest!

Oh and C...here's one for ya. Here I live in South Florida, and I don't go NEAR the water!! How odd is that huh? Hehehe...Got bumped by a shark once (yeah just bumped) and never been in salt water since. The idea of dying by something that goes "Ick, pbbt, human" and spitting us out - geeeshhhhh what a waste! Smile Thanks C, I'll keep ya'll posted as I find out answers...now you have me feeling like that show "Mystery Diagnosis!!" *hug*

Brenda

_____________

ACDF C6/7 & Partial Corpectomy with Instrumentation Aug. 2009 - Top of fusion separated still not fusing Sad
ACDF C5/6 & Partial Corpectomy with Instrumentation Mar. 2008
Ulnar Subcutaneous Transposition and Guyon’s Release Apr. 2008

C2/3 Disk Bulge / Stenosis / Per NS - DDD (new) Oct. 2009 – No symptoms at this time: Left posterolateral disc osteophyte complex resulting in moderate crowding of the left C3 nerve root exit zone. Chronic moderate left-sided foraminal narrowing related to uncovertebral joint thickening and posterolateral towards foraminal bulging of the disc.

Lyrica

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Hi Brenda

The diagram that Cindy suggested is a dermatome chart and here's a link for it.

http://www.apparelyzed.com/dermatome.html

Also, you can get a lot of great info on chirogeek.com. A lot of members here visit that site. Of course, it's really not wise to try and self-diagnose, but I understand wanting to do research before seeing the doctor.

And as for your surgeon not thinking that something that happened to you more than seven years ago not causing problems, YEAH RIGHT! All my docs (and me too) think that a bad car accident I was in almost 30 years ago caused all my spine problems. Sometimes, I just don't get how different doctors can have such varied opinions on things.

Anyway, I hope you get to feeling better and like everyone else said, keep us posted.
Cath

_____________

October 21, 2008 - ACDF, 3-level (C4/5, 5/6 6/7), with hardware and eight screws. C4/5 and 5/6 fused, still movement at C6/7.

February 2009 - Lower back pain and sciatic pain.

January 6, 2010 - Scheduled for TLIF at L4/5.

----------------------------

Each forward step we take we leave some phantom of ourselves behind. ~John Lancaster Spalding

----------------------------

I am in no way affiliated with the medical profession. Any recommendations I make are based on my personal experiences only, so do not take my comments as medical rules.

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Cath

Cath111 wrote:
The diagram that Cindy suggested is a dermatome chart and here's a link for it.

http://www.apparelyzed.com/dermatome.html

Also, you can get a lot of great info on chirogeek.com. A lot of members here visit that site. Of course, it's really not wise to try and self-diagnose, but I understand wanting to do research before seeing the doctor.

And as for your surgeon not thinking that something that happened to you more than seven years ago not causing problems, YEAH RIGHT! All my docs (and me too) think that a bad car accident I was in almost 30 years ago caused all my spine problems. Sometimes, I just don't get how different doctors can have such varied opinions on things.

Anyway, I hope you get to feeling better and like everyone else said, keep us posted.
Cath

Howdy Cath!

Thanks for the site URL. I've been on there, even downloaded the Dematome chart to my computer. When I look concerning C2/3 - I of course look more so at the C3 nerve and affected areas. The headaches could happen, but the eye...grrrr...mystery in the works!

I fully agree with you on past trauma/impacts shouldn't be pooh-pooh'd either. I crashed in a helicopter in 1984 (engine failure with little landing options) and it affected me from the tail bone to the neck! Of course back then there weren't MRI's in use, so all they did was an x-ray. Neurologists weren't used on my exam back then, only the ER doc. I started getting a double curve of scoliosis, and fortunately the doctor I went too after the pain set in about a month later was an orthopedic specialist and practicing in chiropractic manipulations. He made no promises on straitening my back, but he did great! It took another 15 plus years after that for back and neck issues to start being problematic for me! So yes, I agree fully with you. Heck...if it isn't true, then the adage docs give us as we age of "It's normal wear and tear"... isn't that a statement to our life activity cumulation? Hehehehe...Thanks Cath! *HUG*

Brenda

_____________

ACDF C6/7 & Partial Corpectomy with Instrumentation Aug. 2009 - Top of fusion separated still not fusing Sad
ACDF C5/6 & Partial Corpectomy with Instrumentation Mar. 2008
Ulnar Subcutaneous Transposition and Guyon’s Release Apr. 2008

C2/3 Disk Bulge / Stenosis / Per NS - DDD (new) Oct. 2009 – No symptoms at this time: Left posterolateral disc osteophyte complex resulting in moderate crowding of the left C3 nerve root exit zone. Chronic moderate left-sided foraminal narrowing related to uncovertebral joint thickening and posterolateral towards foraminal bulging of the disc.

Lyrica

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NS Appointment Today - Update

I saw my NS today due to the pain that is continuing, and too what if anything to do about it! He re-advised me that since the C5/6 was "one" and the weight bearing is now different, it would "weigh" differently on the progress of my C6/7! He also didn't fully agree with some of the radiology report on my MRI of 3 weeks ago. He is seeing "some" reduction in disk height now, and osteophytes are also forming for my C7/T1, but not a surgical issue yet. He also added that my C2/3 is in addition to the Stenosis, solidly in the DDD mode! -figures heh? He told me with all this going on, that is most likely why I am having all (or most) of these pain issues - lucky me !!! He is attributing the headaches to the C2/3 in its present state, but he doesn't know about the "yawn and eye lid" thing. It could just be a fluke, so see if it continues. I haven't had the sparkles or the eye lid issues for a few days now - maybe...

He is keeping me with the bone growth stimulator @ 4 hours a day, and added Lyrica (300mg a day) for the nerve related pain. I've heard good and bad about Lyrica, and since I am not going back to work until next Monday, I guess I can see which category I fit into! He has also ordered me into PT for 3x a week for 4 weeks with the stipulation it is for strength and flexation - but NO twisting or pulling or traction etc. of my neck! Smile I hope it works.

As a final note, no improved change to the fusion status for the C6/7 - still hoping. Smile

Brenda

_____________

ACDF C6/7 & Partial Corpectomy with Instrumentation Aug. 2009 - Top of fusion separated still not fusing Sad
ACDF C5/6 & Partial Corpectomy with Instrumentation Mar. 2008
Ulnar Subcutaneous Transposition and Guyon’s Release Apr. 2008

C2/3 Disk Bulge / Stenosis / Per NS - DDD (new) Oct. 2009 – No symptoms at this time: Left posterolateral disc osteophyte complex resulting in moderate crowding of the left C3 nerve root exit zone. Chronic moderate left-sided foraminal narrowing related to uncovertebral joint thickening and posterolateral towards foraminal bulging of the disc.

Lyrica

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Brenda. I wish I could

say something that would make some esnse out of all of this, but honestly, I cant.
I am stumped and wish I could offer some valid suggestions.
The only thing I can say, is continue working with your doctors to get to the bottom of this.

_____________

Ron DiLauro (aka PapaRon)

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Thanks Ron

dilauro wrote:
say something that would make some esnse out of all of this, but honestly, I cant.
I am stumped and wish I could offer some valid suggestions.
The only thing I can say, is continue working with your doctors to get to the bottom of this.

Ron,

Appreciate your words. Smile While the news wasn't great at today's appointment, it at least gave me some answers - to that I am actually happy as it relieved a bit of stress right there!! Unfortunately of all the levels, C2/3 freaks me a bit. I was told that basically it isn't a case of "if" they will have to surgically address that level, but "when." This disk area has deteriorated rapidly in just 3 months. Crappy genes I guess?

Since T1 doesn't move, maybe what is going on in there will settle down and not be an issue - but I have lost a lot of my ulnar response now - and that is that level. Sad The fusion,....well, I am still trying to keep positive that it will get its "act" together and fuse.

Once the neck settles down, he is going to MRI my lower back as "issues" are starting to become more and more common - and shooting down my left leg. So far though I have been able to either rest and get it behaving again, or the chiropractor for that area (no chiro neck action - nooooo hehehe). I discussed medical disability retirement with my NS, and he is in full agreement at this stage. I saw some of this coming, so I set things in motion years ago for the financial side of the house, so that will be fine too. Plus the best part of all this Ron?? My Hubby!!! Can't beat that huh? Smile Thanks again Ron.

Even with all of todays news, my mood is pretty darn good!

Brenda

_____________

ACDF C6/7 & Partial Corpectomy with Instrumentation Aug. 2009 - Top of fusion separated still not fusing Sad
ACDF C5/6 & Partial Corpectomy with Instrumentation Mar. 2008
Ulnar Subcutaneous Transposition and Guyon’s Release Apr. 2008

C2/3 Disk Bulge / Stenosis / Per NS - DDD (new) Oct. 2009 – No symptoms at this time: Left posterolateral disc osteophyte complex resulting in moderate crowding of the left C3 nerve root exit zone. Chronic moderate left-sided foraminal narrowing related to uncovertebral joint thickening and posterolateral towards foraminal bulging of the disc.

Lyrica

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